We've done this before so I have a better idea of what I need to improve to make this flight across the Atlantic as painless as it can be for everyone. Last time we flew via London and Duncan was fine on the first short flight from Belfast but very distressed on the second leg of the journey. He had it in mind that once we arrived in London, Disney World would be just a taxi drive away. (This was a reasonable assumption since it's what had happened when we'd gone to Disneyland Paris.) The flight was delayed at London and we had paid to wait in a lounge (Virgin V Room) with good facilities for families. I'd hoped that as Duncan played about loads in the soft play room, he'd be tired and fall asleep on the plane. But he didn't even want to board the cavernous and to him, scary Virgin plane. I'd opted to sit in the bulkhead seats with him thinking that we'd have slightly more space and no one in front to be bothered by his kicking their seatback. These seats are sought after and were allocated to us because of Duncan's disability. However they were a bad choice. We were sitting next to a baby who cried which upset Duncan. The little girl sitting next to me had a packet of sweets of higher value to Duncan than the hard lollies I'd packed for him to suck. We were also exposed to the rude and contemptuous stares of strangers all around. Duncan fussed and whined and occasionally wailed for HOURS and the poor child was so unhappy. I was worn out and the attitude of other passengers near us added to his distress and my stress.
Before boarding the return flight, I had him sit in his stroller and I pushed him about the airport for ages until the plane was ready. It was an evening flight and I tried to keep stimulation to a minimum. We opted for seats in a row of 3 alongside the galley which reduced the number of other people near us. Duncan sat between me and his dad and the other 2 children had to sit alone beside a stranger behind us. I knew that I had to have Duncan surrounded by people who cared and protected from the looks and tuts of paediaphobes/disabled people haters. It was an evening flight and he'd had plenty to eat and been active all day, but was chilled out and relaxed from being pushed about in the stroller. I'd changed him into comfortable clothes and brushed his teeth. When we sat on the plane, I cuddled him and his dad stroked his feet and he fell asleep before we'd left the runway. Success!
This time I have planned like a general. I've booked a flight from Dublin direct to Orlando so no transfer worries. I plan to take some of his absolute favourite sweets and snacks. There are times to worry about healthy eating but when you're in a metal box hurtling along 12km up in the air, that's not the time. Just do what it takes to get by. I will have DS games and his Gameboy. I will fill my Ipod with his favourite movies in case the in flight entertainment is inadequate. I am making him a book showing exactly what will happen at each stage of the journey from leaving our home to arriving at the villa. He will have a travel bag with some favourite small toys and books as well as colouring pens and a notebook in case I need to write out or draw further instructions. We have arranged to sit so as to have Duncan as sheltered from strangers as possible. He will have ear defenders and a neck cushion.
Duncan has outgrown his stroller but he still needs a safe place to retreat to and I need a way of reducing his tendency to run off. I have just received his new and long awaited wheelchair. It's just the right size and will enable us to have a much more relaxed and enjoyable holiday. I've informed the airline of his needs and that he'll be using a wheelchair until we get to the plane. It will make navigating the airports that much easier. I will also use his autism alert card to show any officials who can help us get through the potentially tricky security and immigration rituals.
Best of all my sister is coming with us this time so there'll be 3 adults and 3 children so everyone will be well cared for. I want this to be fun for him and the others, so I will try to be alert but not stressed. Hopefully all this planning will help me strike the right balance.
Tell you what, I can't flippin' wait!
Read the complete post at http://thefamilyvoyage.blogspot.com/2010/01/planning-for-disney-world-with-autism.html
Posted
22 Jan 2010 6:39 PM
by
The Voyage: life with autism in Northern Ireland